Category Archives: Special Needs/Disability

The Hell That is Lyme Disease

It has been quite a while since I have posted on this blog and not because I haven’t had the desire to. Back in February, I began to notice I was beginning to struggle with reading and writing. Before this, I was already experiencing constant exhaustion, to the point that if I wasn’t doing homework, I was usually sleeping. It started out in Spring 2014, when I started taking more naps than usual, but I attributed that to the stress of college life and being an older-than-traditional college student. I had a memory loss issue where I couldn’t remember who I was or where I was; that was fun. At my job I was having trouble focusing on the work, despite it being extremely simplistic (just putting labels on books); I kept switching up book labels and many times I forgot if I labeled the book at all. I tried to get better.

In the fall of 2015 a lot of stuff happened. Boyfriend lost his job, another relative came to live with us (very, very stressful since she is in her 90s), plumbing issues in the house from the toilet to the kitchen, a car accident happened, grandma went to the hospital (but she seems to always be going there), I lost my job in October because I kept making mistakes by switching up the labels. There is more, but I honestly can’t remember the details. I kept working hard in school, but I was tired a lot and was constantly taking naps. I honestly thought this was because I was dealing with a lot of stress and was feeling pretty depressed.

Finally in the Spring of 2015, my boyfriend was becoming very concerned that I was sleeping a lot. My parents thought I was maybe depressed, but to be honest, even I suspected something was up once my boyfriend mentioned his concern. At this point I was just doing homework and sleeping. I had a really hard time doing anything else. Around this time, I sadly lost someone who I had considered a really good friend. I had brought up some concerns I had and that individual became very angry and lashed out at me. I was extremely hurt emotionally and between being tired all the time, having a hard time reading and writing, and just generally living, I didn’t get back in touch, but my boyfriend did for me. Once I had the energy, that individual was pissed that I didn’t get back in touch right away  and said our friendship was over because I didn’t care. That whole story is complicated, but even now I look back at that time with sadness, no regrets, just sadness. I digress though….  It was actually watching the RHOBH reunion episode with Yolanda Foster when I began to suspect that I had lyme disease. She stated that she had trouble reading and writing. I really connected to that, but not wanting to be like the billions of people that self-diagnose using the powers of the internet, I made an appointment to go see the Doctor and I had my father with me, at this point I didn’t trust my memory at all. I told my father before we went about my difficulty reading and writing, and how I was frustrated at how I’d been continually sick for the past 5-6 years. He was very helpful during the appointment.

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